Christmas party, the Ectodermal Dysplasia Society

Many children with ectodermal dysplasias have physical features which set them apart from everyone else.  These are rare genetic disorders which often leave children with little or no hair, unusual teeth or no teeth at all, and many other symptoms.

Children can experience bullying because of the way they look and they can feel very isolated.  They're often without sweat glands and miss out on playing with friends on a warm day.  Their susceptibility to infection can also mean frequent  visits to hospital and lots of time off school.

An event like a Christmas party gives the children and their families a chance not to be different.  The children can also play in an environment that suits their needs.

Funding from Jeans for Genes will not only help to pay for Father Christmas to make an early appearance, it will also mean that families on low incomes will get help with transport costs.