Activity weekend, the Klinefelter's Syndrome Association

Klinefelter's syndrome is a genetic disorder which is caused when a baby boy is born with an extra X chromosome.

Boys normally have an X and a Y chromosome while girls have two X chromosomes.  But in Klinefelter's syndrome the boy has XXY.  Sometimes they can have two or even three extra X chromosomes but that's far less common.

Boys and teenagers with KS may take longer to develop their speech and language.  They can have  a short attention span, be shy and find it difficult to express themselves.  They can find social situations difficult as a result. 

As they get older, men with KS who haven't been diagnosed can feel tired or lethargic for no apparent reason.  They have a low sex drive, a lack of body and facial hair, poor muscle bulk and/or some breast development.  Even after diagnosis and treatment, many men with KS can suffer from low self-esteem.

Your donations this year will be helping to supporting an activity weekend which offers rock climbing, canoeing and abseiling to men with Klinefelter's syndrome.

For some, it could be the first time they've met another man with Klinefelter's, and it will be a chance to share experiences, gain confidence and have fun.