Jeans for Genes: helping children with genetic disorders

Raised to date

£30,000,000

Educational materials for teachers, the UK Thalassaemia Society

Thalassaemia is a genetic blood condition which causes life-threatening anaemia.  People with the condition have to have blood transfusions every 3-4 weeks and need daily medication to survive.

Although anyone can carry the gene for thalassaemia, it's most common in Asian, Middle Eastern and Mediterranean communities.  English isn't always the first language of people from these backgrounds and they often have difficulties in explaining their child's condition to teachers.

Children often have to take time off school, they might be too tired to take part in sports and they could need work to at home if they can't make it into the classroom.

This is why the Society wants to produce materials that will help parents to explain, and teachers and other professionals to understand.

Your donations on Friday 3rd October, Jeans for Genes Day, will mean the UK Thalassaemia Society is able to do this, and will hopefully prevent children with the condition from being at a disadvantage at school.