In this issue...
- Get involved! - Why you should be part of Jeans for Genes Day 2010
- Changing lives - Meet Ieuan and Ellie, just two of the children you're helping
- Educational fun - FREE brand new resources for schools
- Designer merchandise - get this year's limited edition t-shirt
Get involved!
Jeans for Genes Day 2010 takes place on Friday 1st October. It's the annual event which gives you the chance to be stylish and comfortable in your jeans and raise money for children with genetic disorders.
It's also our 15th birthday so you don't want to miss the party! How about baking and selling slices of birthday cake? Visit our Jeans for Genes Day website for lots more fundraising ideas to make your Day special.
2009 saw a considerably drop in our income. It affected the amount we were able to offer to charities which support affected children and families. So we really need your help to reach this year's target of £2.5 million.
Ieuan and ChristaChanging lives
Your fundraising is already making a huge impact on Ieuan's life. At 18 years old he's losing his ability to learn, walk and communicate because of the genetic condition, Rett syndrome.
But Christa, a MOVE practitioner, is helping him to maintain his skills for as long as possible.
Just £2,200 trained 25 practitioners like Christa in the MOVE Programme. It's a combination of family knowledge, education and therapy that helps children to achieve their goals.
"MOVE showed me just how much you can achieve with a child," says Christa. "I can incorporate the programme throughout the day so the children spend less time out of class doing physiotherapy."
Ellie with her mum, TraceyEllie is five and has CHAT Congenital Myasthenic Syndrome. She has periods when she stops breathing. She sometimes needs a ventilator which is why she has a tracheotomy in her throat.
Her parents were told she was unlikely to survive.
Rare conditions like these can be very isolating for families. By taking part in this year's Jeans for Genes Day you can help us to fund a website, social networking for busy parents and a weekend for them to meet.
Read more about the projects you'll be helping to fund in 2010...»
www.genesareus.orgEducational fun
Our brand new educational resources will be perfect for assembly,
science lessons or PSHE classes.
Engaging films of children's daily
lives and related activities and worksheets will bring the meaning
behind the Day to life for key stages 1-4. Visit www.genesareus.org to see the full range. Available from the beginning of July.
Designer merchandise
Created by young talent at London College of Fashion and endorsed by fashion industry experts, our 2010 t-shirt features a 'charm bracelet' design in silver foil. You'll be able to get your hands on one from mid-June from our webshop for £12.99.
Fifi and the Flowertots are back!
Fifi and the Flowertots are helping us to raise money with a new range of stickers. Sparkly and featuring Flowertot Garden favourites such as Fifi Forget-me-Not, Primrose and Bumble, there are four different sheets to collect. Available from our webshop and soon to be found in high street stores near you.
Sign up now and help us to raise £2.5 million to change the lives of children with genetic disorders.
Thank you,
The Jeans for Genes Team.